R20 coincidentally, after a bit of wider reading I asked about IF in supplements today, when I went for the last injection on my course. The nurse & the doctor both seemed puzzled, said they hadn’t heard of a pill or spray that does that. My doctor added sheepishly that she hadn’t actually looked at my IF either😔typical eh?) And now they’ve said that they refuse to give me any more doses or look further into my condition until six months down the line. Given how poorly I felt after missing one injection, I dread to think how rough I’ll feel in six months time.
R16 thanks so much for that, really good info. As I mentioned before, despite my request for information I still haven’t been told and haven’t the first idea what has caused my apparent deficiency/malabsorption (beyond “yeah....at least we know it’s not anaemia”, thanks Doc🙄), but having read all the common causes I’ve narrowed it down through guesswork and think it’s probably MTHFR or some sort of autoimmune disorder—something that won’t go away with time or lifestyle change. It just makes sense from looking at my life’s medical history. Annoyingly, the Society (at the link you provided) say that they don’t advise or signpost people who aren’t paying members of their group, and that to join you have to have been diagnosed with PA (which I don’t have), so no joy for me there I’m afraid!
You’re right that high street pharmacists won’t administer jabs without a legit GP’s prescription—today I called around Superdrug, Boots etc. and they said that if I didn’t have a shiny new scrip then there’s nothing they can do to help me. It’s a real pain, because their counters are really close to my house and their injections only cost £30 a pop—would have been so handy, well within my budget, and a huge load of stress off my mind (elevated cortisol has a devastating effect on MTHFR, js.....) G00gle suggested a derm clinic, beauty salon and a naturopath in the next county that give expensive (one was £85 a time) B12 injections, but I worry about their medical hygiene and acumen, wonder if it might be safer to inject myself...
[quote] there is no need to aspirate with IM or SC. Self injection for b12 deficiency is no more dangerous than insulin for diabetics.
Could you please elaborate on this? (and please explain what ‘IM’ & ‘SC’ are?) I’ve never self-injected before, and so don’t know the first thing about the right process or safety protocols, dosing (would I need it every month? Every three? Or just whenever I feel bad?), or what to expect. As much as I’d rather not self-administer (I’m a bit squeamish, and do trust nurses), it seems like my healthcare providers have left me high and dry, at least for the time being. R7 makes it sound easy, but is it really?
Sadly, I’m also hearing that Brexit has hiked up VAT & customs duties in Europe so much that most of the online pharmacies who formerly supplied and shipped injectables to the U.K. now no longer do, or if they still do they’re charging hundreds of quid in customs at a time. So if I can’t find a reputable company who sell and deliver for an affordable price, I’m totally fucked. Thanks, BoJo!
As for what I can do to get by in the meantime...transdermal patches? Topical B12? Eating liver 3x a week? There’s no long-term care in place for these conditions, it’s absolutely shocking.