R11, I hope this doesn’t give you nightmares. I lack an enzyme that metabolizes succinylcholine. The enzyme is pseudocholinesterase. Succinylcholine was frequently used during abdominal surgery. It completely paralyzes you. How did I learn I lacked this enzyme? The hard way. I woke up from surgery unable to move and then I realized I was on a ventilator.
Every once in a while someone would peel open one of my eyes and tell me I’d had a “reaction” to the anesthesia. It wasn’t a reaction, of course, but my lacking the enzyme that caused the problem. I guess “reaction” was easier to explain, because the immobile are all stupid, you know, as well as apparently hard of hearing (please don’t yell in our ear).
They told me that I’d be fine as soon as the anesthesia wore off. I didn’t believe them. I thought something horrible had happened during surgery and this was now my life. I was 23 at the time. And I thought I would be like that always. A thing in a bed.
This went on for SIX AND A HALF FUCKING HOURS. And the whole time I was screaming just like that in my head. No sedation. I’ve always been claustrophobic and had always thought that would be the worst thing that could happen to my body And it was. I know people survive, some even thrive, like that for many years. I could not. I’m honestly not sure why I didn’t go completely mad.
It made me even more claustrophobic. It made me a basket case about having even minor procedures done. Surgeons and anesthesiologists are always very nice about it as I’m blubbering away explaining why I’m blubbering. They are usually horrified that I was unsedated.
Holy shit, I’m writing a book here. Sorry. I’ll wrap up. There is now a genetic marker for the pseudocholinesterase. All my blood relatives were checked and no one else lacks the enzyme. I never learned why I was not kept sedated. I always figured it was because I was in the Army at the time and and was supposed to be tough.
When I started to be able to move again, I banged on the rails and kept banging until one of the docs said he’d try to take me off the vent. I just kept on banging and I’m pretty sure he saw the potential for murder in my eyes if that fucking thing didn’t come out NOW.
Breathing is so fucking beautiful.
Every time I’ve needed another procedure (I got shitforlungs) my husband and I have The Talk, in which I remind him again how horrible this was and if something like that ever happened he better pull the plug and make sure I was sedated until safely dead. I’m not afraid of death. I’m flat-out terrified of living like that. He loves me and he gets it. He also knows if he let me go without sedation I’d come back and haunt him until the end of time. It wouldn’t be a pretty “The Ghost and Mrs. Muir” haunting, though. I’d be a proper wailing banshee and drip ichor all over his soft furnishings bwahaha.
Thanks for sticking with me, Reader, if stick you did. The drive from the Bay Area to SW AZ is one of the most boring trips on earth. And that is why you got to read this today. :)