💩 People with Crohn’s Disease

What? Caroline Rhea?

Is she a lesbian? Speak up!

Everyone I've met with Crohn's has been mean and nasty. Unhappy, angry, and miserable people. They were this way before the Crohn's diagnosis. Crohn's is emotional karma writ on the body.

Never mind that, what about those poor people with Crones disease?

Crones are inevitable

I'm afraid I can't take seriously anyone who uses the shit emoji.

R2, my aunt had it and she was a nice person.

We are ALL God's children

One of my best friends has Chron's and he's delightful and kind and even though he has been through hell, he never complains. OP et al. you're full of, excuse the reference, shit.

Is there any way to avoid it?

R9 avoid Crohn’s? It’s not a virus, dear.

spare me your doodie drama, Mary....who do you think you are, CAMILLE GRAMMAR??

My autistic son has crohns. He has such a high threshold for pain that by the time he started showing any distress it was so far advanced he needed surgery. They removed two feet of his intestines. It was a nightmare. He was in the hospital for a week and fought the whole time. They had to keep sedating him. He was about 15 at the time, but has the mentality of a toddler. There was no way to explain to him what was happening or why. He just thought everyone was being mean to him. He's doing well now, but there is no cure. I live in dread of having to go through another hospitalization with him again.

I remember someone telling me that there had been good results in trials done with threadworms or tapeworms or something? (And no, I’m not the intestinal parasite troll!)

I remember saying to her that the research probably wouldn’t go very far or end up as a treatment as I couldn’t see a way Big Pharma could monetise it - don’t imagine you can patent a tapeworm! And she got cranky with me. It was very promising research she said - of course more would be done... then she read up - and lo! - zilch interest in funding as Big Pharma couldn’t see the point - after all - if they’re not gonna make lots of $$$$$$...

It might have been another condition - but almost certain it was Crohns.

My friend with Chron's said a year of Remicade treatments were billed at $30,000. No wonder you see the ads for this, and Humira, and other auto-immune treatments. There's plenty of money in biologics.

My favorite boss had Crohn’s. He was an awesome funny person.

Can you be a bottom with crohn’s?

They expect everyone to cater to their needs and eat the same crap they do.

OP and a few others on this thread are trolls

Sometime DL and it’s anonymous posters truly hit a low- making fun of and disparaging people with a serious chronic disease that kills and maims in a most awful manner.

The monitors really should shut this thread down.

I think it could make for an interesting thread if people with inflammatory bowel conditions could use it to tell us about their struggles.

There was one, R20, I think too many trolls got to it.

I knew one guy with Crohn's. He was a nice person.

Crohn’s seems to be connected to other medical conditions, like auto immune disorders (rheumatoid arthritis and lupus) autism, and other chronic medical conditions.

r12, I think you've been through a lot. I hope you don't have to go through more with your son's Crohn's.

Women I’ve known with it had eating disorders- now, they could’ve been lying to explain away weird food choices/refusals.

R23, it is an auto immune disorder. Many become dependent on parenteral nutrition (intravenous). I’ve taken care of many in my career.

My brother got it in high school. He had the surgery. At that time, it wasn’t always successful. After taking out the bad part of the intestine, it would just spread to a new part of the intestine. However, his doc called my bro a poster child for successful surgery. He was fine until his mid 50s, when I think it has flared up again.

Everybody likes him. He’s the compliance chief for a major financial company. He’s better than me at everything and I don’t even mind, as he’s so nice.

His son got it in his college years. His meds have it under control. He’s a Rick star and very successful at whatever he does.

Oh, they never mention it. Never. It’s easy to forget they are dealing with it.

[quote]Women I’ve known with it had eating disorders- now, they could’ve been lying to explain away weird food choices/refusals.

Or they could have been suffering from an extremely painful disease that requires multiple food restrictions to bring under control.

People with this illness can be triggered by particular foods which they cannot tolerate. It makes it practically impossible to go to a restaurant and eat food with mystery ingredients and mystery spices.

When I had really severe IBS, I could not eat either cinnamon, garlic, heavy cream or anything with buttermilk. That meant sometimes donuts or pancakes made me horribly sick for hours and sometimes they were fine. No way to know in advance. Same thing with cinnamon. A tiny bit was okay, a lot led to four hours of severe cramps and diarrhea.

Restaurant food tends to have either cinnamon ( if it’s sweet), or garlic (if it’s savory). Third is cream (sauces, gravy). I could go into a restaurant and not be able to eat one single thing on the entire menu including the soup and salad, because they threw garlic or cream sauce in everything but dessert. And every single dessert would have cinnamon or cream. It was so frustrating, and believe me, I didn’t have an eating disorder. It’s just that most socializing revolves around food. And people would get extremely offended or weird if I wouldn’t eat a heavy meal with them. And then I would get stomach cramps while I was still in the restaurant with them and couldn’t leave the bathroom for an hour, in a restaurant. It was just not doable.

Years later, my IBS is in remission and I can eat cinnamon all day.

I just remembered. I had bad IBS for a few years, but it went away on its own. I have no idea what that was about.

I worked with a woman briefly years ago who had crohns.

She was very goodlooking - a lockout really - really slender and super smartly groomed. Model level hair and makeup.

For someone who was sick - she had great skin and lustrous hair - it wasn’t just the makeup! And she seemed to go through a lot of coffee, cigarettes - and cake! - every day. And had plenty of energy (enough to have several inappropriate love affairs with guys who worked with us).

She was actually very nice too. Friendly and a great smile. Not a rocket scientist. And not a particularly hard worker. But seeet and socially very bright.

But always wondered if she really had crohns or if there was something else with eating disorders going on. She was model slender - but not painfully thin - unlike another woman who’d come in to do research and write books (this was a state art museum and had a big research library) - the other woman looked like an even thinner and more malnourished Anna Wintour. Middle aged. Beautifully dressed and kitted out but concentration-camp thin. I assumed she was dealing with cancer - but when she died it was revealed it was anorexia. She was lovely too. So sad.

I have read that eating disorders may increase the risk of autoimmune disorders. So that may explain the link.

I suffer occasional IBS. If I stay away from dairy, bread, and refried beans, I’m fine.

It’s nothing to Crohn about.

When I was taking Lipitor, it gave me violent trots. I stopped taking it and I felt better. I take fish oil for cholesterol.

Crohn’s is a serious auto-immune illness and can really make life miserable for those suffering from it.

It can cause debilitating pain, chronic and unpredictable diarrhea. The treatments for it (steroids), have their own miserable side effects. And it often requires surgeries that are invasive and can be disfiguring (colostomy, etc).

I don’t blame those who have it if they are angry or unhappy. I know I would be.

Nobody comes to Datalounge anymore and this is why. Obvious, stupid trolls who try to bate. Nobody has time for this shit pun intended

My brother has it and it’s horrible. Has to have an IV infusion once per month. He has loads of side effects from his medication. He’s a lovely person and has a tough road ahead managing his condition. Hope you get it OP then you’ll join in the misery people with this condition experience.

A friend of mine died from complications of Crohns. It is a very painful lifelong autoimmune disease. It's not a shitting disease and there is nothing funny about it.

As horrible as my life is, I'm grateful I don't have to contend with this disease. It sounds like hell. An acquaintance had to have feet of intestine removed and was out of work for months. His employer held his job for him. This was years ago; they probably wouldn't do it today.

I hope that with the pace of drug research these days, they can get relief for most people stricken in the next few years. But everything auto-immune is so tricky.

I just found out a friend has colon cancer. Is that a particularly bad one? Or is it a manageable one? He’s only about 55. I hope he can be cured. I’m very upset about that.

R12 Just put him up for adoption. Save yourself, it is only going to get worse.

OP - I wouldn't want your karma, my man.

Depends on what stage it is, R41. If they caught it late then the prognosis won’t be good, I’m afraid.